If I here this one more time I am going to scream…..
I know that the people that say this to me do not mean me any harm; I know they are not being mean to me, but I also know they do not get my illness and the daily struggles of living with this condition. Now that I write this I also realize it’s from people that don’t know me really well, or understand my condition or how it affects me.
Also, these folks did not know me at the beginning of my diagnoses. The beginning when I could hardly function and thought I was losing my mind, and could not remember what I did 2 hours ago, let alone the day before. They did not know me when every muscle in my body ached, when every night I was treated to nightmares and terrors, waking up in a sweat and trembling. They did not know me when I could not function enough to read, or write, follow a recipe or hold a conversation. A time when getting out of bed and having a shower and getting dressed was called a victory. That seems like another life time ago and shows me how far I have come.
Tomorrow I am going with two friends over to the Vancouver Art Gallery. I am looking forward to this; it will be a long day as we have to drive down to Nanaimo to get the ferry over to the Vancouver. I feel very comfortable with these friends because they understand and accept me for who I am. I will enjoy myself with them and am looking forward to seeing the exhibitions. I will also remember the entire trip, which is like magic to me. I have had conscious linear memory for a couple of years now, but it’s still feels magical.
I am looking forward to tomorrow’s adventures, it will be a long day, but it will be fun and I’m sure I will learn a lot. I know I will be tired the next day, and I know the friends I am going with, and those that are in my life will understand why I am tired, and accept it, as they accept me, with love and understanding. I am very fortunate to have these people in my life. Yes, I have come a long way and as my psychiatrist would tell me " things are unfolding as they should."
Those are my thoughts for the day…
Cheers and be well